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Merge pull request #59 from BioData-PT/fega-contentathon
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Add content about the benefits/value of joining FEGA
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M-casado authored May 16, 2023
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Expand Up @@ -35,8 +35,18 @@ Summary of responsibilities of Central EGA nodes (EMBL-EBI & CRG) and Federated
| Chairs the Federated EGA Committees | Participates actively in the Federated EGA Committees |
| No time commitment for FEGA | Expected to stay in FEGA for at least 4 years |


<br/><br/>


## What are the benefits of joining Federated EGA?

* **Globally Accepted Standards**. Federated EGA develops and follows interoperable global standards for human data access accepted by the <a href="https://www.ga4gh.org/" target="_blank">Global Alliance for Genomics & Health (GA4GH)</a>. This commitment makes the whole service trustworthy for the most demanding data submitters, often concerned with data security and privacy.
* **Built with FAIR in mind**. Federated EGA is deeply commited to the <a href="https://www.go-fair.org/fair-principles/" target="_blank">FAIR principles</a>. By abbiding to FAIR you ensure that your data has the necessary Findability, Accessibility, Interoperability, and Reuseability to meet requirements of funders.
* **Enhanced Discoverability**. Your (meta)data will be available in a global catalog, maximizing its discoverability.
* **Aligned with most relevant data initiatives**. Many health data related projects are now under way, in particular the <a href="https://gdi.onemilliongenomes.eu/" target="_blank">Genomic Data Infrastructure (GDI)</a> and the <a href="https://www.european-health-data-space.com/" target="_blank">European Health Data Space (EHDS)</a>. These projects use FEGA like architectures for data storage and distribution, once again proving the quality of this design.
* **Network of Experts**. By joining Federated EGA, you will be part of a network of experts, making sure to stay up to date with the State-of-Art on Data Sharing.

## How do I start?

The <a href="https://elixir-europe.org/communities/human-data" target="_blank">ELIXIR Federated Human Data (FHD) Community</a> provides a framework for the secure submission, archival, dissemination, and analysis of sensitive human data across Europe, and wider. All Federated EGA communications are currently sent through the ELIXIR FHD open channels. Welcome to join us!
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